Living with Huntington's disease: ‘For our family, the end of days is always close at hand'
1 month ago - By The Guardian
Fifteen years ago, writer Charlotte Raven was diagnosed with the incurable neurodegenerative disease - what did it do to her family and her marriage? The day I found out how I was going to die began innocuously enough: the usual blur of nappy changing and tetchy texts to my husband. Life in our recently refurbished London home had settled into a rhythm, with a low-level background of domestic discontent. Arguments about wallpaper had run their course; our cats had made their peace with our one-year-old daughter, Anna; and I was pleased to have married a responsible hedonist who liked...
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